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First Workshop for Improving Disability Statistics and Measurement
Bangkok, 24-28 May 2004
Instructions for national action plans

Exercise for 27 May, 2004

“ACTION PLAN FOR GONDOLAND”

Gondoland has several government departments which collect different disability information for their own use, and the country’s NSO has tried, not very successfully, to measure disability through a census instrument. The information available to government is partial, inconsistent and not very relevant to improving health and disability programs. To make better use of scarce resources and improve the services and opportunities for the disabled population an action plan for introducing a common framework is needed. Upon the initiative of the NSO an inter-agency committee has therefore been formed to coordinate and develop the country’s health and disability information system.

Within this context a working group has been established with the task to develop a uniform approach, based on international standards, that can better meet the data needs of the health and disability sectors.


Main components of an Action Plan for improving disability information

  1. Strategy for awareness building and promotion of ICF and BMF among stakeholders.
  2. Development and testing of a standard set of disability questions for a survey and/or census instrument.
  3. Design of an implementation plan for ICF and strategy for its wider implications.
  4. ICF training tools for producers of disability data for national use.

Instructions: A generic action plan for the first component is outlined in the next pages. Based on the discussions we have had at this workshop and inspired by the generic action plan, draft an action plan which would reflect the reality in your country and the needs for disability information. Only the first component needs to be covered in detail. To the extent possible try to make the tasks and actions of the first component take place in 2004. Please be prepared to report back to the meeting on Friday morning.

OUTLINE OF AN ACTION PLAN

Activities/tasks:

A consultation process to be initiated by Working Group amongst stakeholders and the following action points to be agreed upon:

  • Identify possible collection vehicles, e.g. census, existing household survey or new survey for disability.
  • User Group to be established consisting of:
    • All relevant Government department
    • Key bodies and advocacy groups
    • People with disabilities
    • Academics and researchers

Note: make sure that the initial letter/communication set out the broad purpose so that the stakeholders involved can send the most appropriate representatives to the user group.

  • Consultation with Ministry of Health to involve the WHO country and regional office for support
  • Working Group to start making an inventory of disability information available prior to meeting
  • First meeting of user group to:
    • Discuss and educate about ICF framework and BMF
    • Inform of intentions to collect data
    • Inventory of national data sources and data collectors, as well as international (e.g. data for selected ICF domain from WHS)
    • Identify extent to which current and future information needs are met by existing data
    • Seek advice on data needs not already met
  • Document information needs. This should be done by users before next meeting
  • Call a second meeting of user group to:
    • Collate information needs
    • List and define data items needed to meet information needs
    • Determine most appropriate collection vehicle
    • Prioritise and agree on key data needs to be met by survey
    • Agree on definition of disability, especially which ICF components it will encompass
  • Consider budget and operational issues
    • Decide whether to conduct census or survey or both
    • If survey, decide on possible extent of data
    • Agree on scope and coverage of survey
  • Prepare detailed plan for development and testing of collection vehicle(s)
  • Draft first stage of the broader National Plan for disability information
  • Ongoing learning for all groups involved
    • ICF
    • UN Guidelines
    • Washington group reports


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