Slide
1 Cultural
issues and Case studies
Ken Black
Slide
2 Cultural issues
- This is a very difficult
area
- Being considered by the
Washington Group on disability statistics,
especially in terms of comparability of measures
across (and within) countries
- Might never be able to
be overcome, but can be minimised
Slide
3 Some issues
- In some languages there
is no overall word for "disability"
- Asking about "disability"
is subjective. Many people do not identify
as having a disability when they have significant
activity limitations or participation restrictions
- Language is sensitive
- Cut points between levels
of "difficulty" are subjective
- Reluctance in some cultures
to identify people in their household with
a disability
- negative image
of people with disabilities
- perceptions of
punishment and guilt
- Expectations about activities
that should be able to performed and participated
in vary across cultures (and sexes and ages)
Slide
4 Minimising
impact of cultural differences
Use of standard:
- concepts
- definitions
- question sets
- survey methods
Concepts and definitions
- Based on the ICF
- Targeting a standard
set of domains
- Using an international
measure (for example, one to be developed
by the Washington Group)
Slide
5 Minimising
impact of cultural differences (continued)
Question set
- Needs to use language
that is understood and acceptable in the environment
the survey is to be enumerated
- Needs to be acceptable
to people with disabilities, for example,
neutral and avoiding terms like disability,
handicap, impairment etc.
- Needs to be thoroughly
tested in the environment
Survey methods
- Use of standard survey
methods that are fully representative of all
groups in the community
Slide
6 Minimising
impact of cultural differences (continued)
Interviewer issues
- Train interviewers well
- in all aspects
of the survey
- about the experiences
of people with disabilities
- Interviewers must
- understand that
there are myths and stereotypes about
people with disabilities, but many of
them are not true!!
- always interview
in a professional and sensitive manner
- ask all questions
- not assume or anticipate
answers
- be patient and
let the respondent finish
- Use of Primary Approach
Letters and Brochures to explain
- the importance
of the collection
- how results will
be used
- that their household
was selected at random and they were not
targeted because someone with a disability
lived there
Slide
7 ABS interviewer
training
- ABS disability survey
training sessions were three days for all
interviewers
- The interviewers were
already well trained in general interviewing
procedures, including computer assisted interviewing
- Training covered:
- major users and
uses
- structure of the
questionnaire
- main survey populations
- questions and sequencing
- coding of conditions
- practice interviewing
- issues relating
to interviewing people with disabilities
Slide
8 Case studies
- Selected strategies for improving disability
data
- Canada and NZ approach
to disability estimates - Census to provide
population for follow-up detailed survey
- Harmonising data to relate
data from different sources
- ABS 2006 census strategy
- Synthetic estimation
of survey and population census data to produce
small area product
- Increased analysis with
other social topics
- eg, general social
survey, household expenditure
- Confidentialised Unit
Record Files
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